Category: Rare Diseases
Rare diseases
RARE Health Equity Forum, September 18-19, 2023
#GGSummit #raredisease #rareadvocacysummit
Read moreWhole Genome Sequencing Tests
Child and Youth Care is embarking on a whole genome sequencing testing initiative. This project is targeted at complex and[…]
Read moreWorld Haemophilia Day 2023
Every year on the17th April, World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, and other inherited bleeding[…]
Read more28 February 2023 was a Rare Disease Day
Happy Rare Disease Day 2023!!, we celebrated together with the 300 million people living with a rare disease worldwide. In[…]
Read moreInstitutional Strengthening
September Edition Week 1: CASE MANAGEMENT in an NGO This week, our organization got busy organizing our various patient files.[…]
Read more
Child And Youth Care Zimbabwe Virtual Run!
Introducing our very first Child And Youth Care Zimbabwe Run for children living with rare diseases. To be held from[…]
Read moreRare Diseases: How to cope during Lockdown
How to protect people living with a rare disease as lockdown measures are being lifted: The Covid-19 pandemic has had[…]
Read moreGray Platelet Syndrome (GPS)
What is GPS? It is an inherited bleeding disorder associated by abnormal platelets which are small blood cells involved in[…]
Read moreFemale hemophilia
Female hemophilia is rare. Women with hemophilia are called “symptomatic carriers” meaning that in addition to carrying the gene, they[…]
Read more