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RARE Health Equity Forum, September 18-19, 2023
#GGSummit #raredisease #rareadvocacysummit
Read moreWhole Genome Sequencing Tests
Child and Youth Care is embarking on a whole genome sequencing testing initiative. This project is targeted at complex and[…]
Read moreWorld Haemophilia Day 2023
Every year on the17th April, World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, and other inherited bleeding[…]
Read more28 February 2023 was a Rare Disease Day
Happy Rare Disease Day 2023!!, we celebrated together with the 300 million people living with a rare disease worldwide. In[…]
Read moreInstitutional Strengthening
September Edition Week 1: CASE MANAGEMENT in an NGO This week, our organization got busy organizing our various patient files.[…]
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Child And Youth Care Zimbabwe Virtual Run!
Introducing our very first Child And Youth Care Zimbabwe Run for children living with rare diseases. To be held from[…]
Read moreRare Diseases: How to cope during Lockdown
How to protect people living with a rare disease as lockdown measures are being lifted: The Covid-19 pandemic has had[…]
Read moreSickle Cell Disease
What is Sickle Cell Disease? Sickle cell disease (SCD) is a rare blood disorder that is inherited in an autosomal[…]
Read moreGray Platelet Syndrome (GPS)
What is GPS? It is an inherited bleeding disorder associated by abnormal platelets which are small blood cells involved in[…]
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