Patient story Greetings and salutations to you all. My name is Dean and I have Hirschsprung disease. This disease has[…]
Read moreAuthor: Trudy Nyakambangwe
RARE Health Equity Forum, September 18-19, 2023
#GGSummit #raredisease #rareadvocacysummit
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Child And Youth Care Zimbabwe Virtual Run!
Introducing our very first Child And Youth Care Zimbabwe Run for children living with rare diseases. To be held from[…]
Read moreRare Diseases: How to cope during Lockdown
How to protect people living with a rare disease as lockdown measures are being lifted: The Covid-19 pandemic has had[…]
Read moreSickle Cell Disease
What is Sickle Cell Disease? Sickle cell disease (SCD) is a rare blood disorder that is inherited in an autosomal[…]
Read moreGray Platelet Syndrome (GPS)
What is GPS? It is an inherited bleeding disorder associated by abnormal platelets which are small blood cells involved in[…]
Read moreFemale hemophilia
Female hemophilia is rare. Women with hemophilia are called “symptomatic carriers” meaning that in addition to carrying the gene, they[…]
Read moreBleeding Disorder
Recognizing Women Carriers Of Hemophilia
Child and Youth Care (CYC) Response to Covid-19
As CYC we stand in solidarity with other organizations as we express our heartfelt support to the individuals and families[…]
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