Author: Felicitous

By Jejaira Siwela (ZIMSA) He opened his eyes once more, or at least he thought they were open, but, he[…]

RDI is advocating for World Health Assembly resolution on rare diseases in 2025. This campaign aims to underline the critical[…]

Trisomy 13, also known as Patau syndrome, is a genetic disorder that occurs when a baby has an extra copy[…]

Let’s talk about Hirschsprung: Shining a Light on a Rare Condition It’s 7 days to #RareDiseaseDay! Today we bring awareness[…]

Spinal muscular atrophy (SMA) is a rare genetic disease that weakens muscles, making even basic activities like walking or breathing[…]

Imagine a world where every breath is a struggle, every movement a hurdle, and the simplest tasks require unwavering determination.[…]

Rungamai is an adorable and beautiful 2-year-old with a unique journey. She was born with holoprosencephaly, a condition that affects[…]

With 44 days to go to Rare disease day we call for action for people living with a rare disease[…]